Follow along as we share the ups, downs, and everyday moments of a teenager who inspires everyone around him. Your prayers and support mean the world to our family.
Gods perfect timing doesn’t always match ours — and answered prayers come in forms we don’t always want to hear or see. But God is always working. Even when we lay our tired hearts and souls down at night. He’s moving and working as we toss and turn and wake up with tears on our face at 3:27am asking Him questions only He knows the answers too.
And this week - scananxiety - has been a real thing for this mom. I never felt the anxiousness or the fear before the last few months. Living on a prayer & not letting my own fears affect the day to day life. But God hears our prayers. We have such a strong group of warriors standing beside us as we walk the unknown of Keaton’s Cancer Diagnosis.
But its Gods Plans. Not ours. And that’s a constant reminder that Faith is Bigger than anything. Don’t get me wrong. Modern Medicine and Science make a huge part of why we are still standing here today. Because every single time we meet with our Head Oncologist + Radiologist & our HeMoc Team (not to mention the Neurosurgeon) they are in a complete shock.
Keaton continues to “dumbfound” them. He laughs and shakes off saying “it’s a farm kid thing” —- and YES. while I do believe some of it’s because of being farm kid strong & raised … it’s His Faith & Trusting in Gods Plan for him.
This past Monday, he had another set of Labs, full spine & brain MRIs + the Lumbar Puncture. And I am so thankful for each and every one of you who’ve prayed with us the last 365+ days since we found out he had a “trespasser” in his brain.
While his AFT & certain tumor markers still are high they are no longer elevated like they had been. They are holding steady at the lowest points they have been since diagnosis. The tumor is maintaining size ( NOT GROWING OR SPREADING!!! ). The RadOnc Team gave us a Hail Mary in July. Moved mountains to jump start something on a Holiday weekend. Gods Timing changed our whole month of July and I will forever be thankful for that.
Gods Timing. Is not OUR timing. But His. Keatons scans continue to show that the tumor is *behaving* with the ongoing trial treatment drug, brentuximab. So we will continue with that every 3 weeks. Their biggest concern right now is him losing weight. So we are working on that because no one wants to have to deal with a NG tube. Keaton will continue PT & OT weekly to help aid the left side mobility as well as get IV fluids & nutrients during the week.
Rex & Keaton will be seen out and about more frequently (our hopes is for him to get back to a more normal 15 year old freshman life). Rex has been a God Gift. Coming in the chaos & stepping into a world of crazy. He’s in full Service Dog Train Mode. Working beside Keaton to be an extra set of paws not just a lovable pet. —-
“Thank you” doesn’t exactly seem like enough to express how grateful our family is for each and everyone who’s been along this path with us. Praying. Supporting. Mommas Coffees. The freezer meals -but the CARDS (this has been the biggest blessing for Keaton & I to read). The Donations. We couldn’t have gotten through this without you all. 💙🩶
When they say “no one fights alone”. Our community rallied with us. And never letting us feel alone. We are rural proud!
⸻ Sunday, December 7, 2025 update ———
Some days, there just isn’t a whole lot to say.
Cancer, of any kind … drains you in ways you never truly prepare for. The waiting, the wondering, the hoping… it takes a toll that doesn’t always show on the outside.
A year ago, Keaton wrapped Christmas lights around “Bob,” his IV pole, determined to bring some joy into the hospital hallways. That same spark is still in him. This week, we step into another round of the unknown—MRIs, bloodwork, a lumbar puncture, and the 5th treatment of the trial drug.. while still carring on as if it was any other day of the week.
🩶💙🩶💙🩶
Good days. Hard days. Moments we celebrate and moments we just breathe through. But through all of it, we keep choosing faith over fear. Because our one constant is Jesus.
Please continue praying with us—
🩶 Praying for steady hands and clear scans.
🧠 Praying for strength on the hard days and gratitude on the good ones.
💙 Praying for peace that only God can give, and for trust as we place every step in the Lord’s hands.
Thank you for walking this journey with us. We know we couldn’t without the love & support thats been shown to us!!
Trying to take “cute” pictures are RUFF business for a 1 year old toddler pup 🤣
Keaton & Rex want to wish everyone a happy Thanksgiving!
🍁
🌤 Soaking Up the Sunshine ☀️
As we head into tomorrow’s fourth treatment, we’re holding tight to the warmth of the sun, the strength God continues to pour into Keaton, and the hope that keeps us moving forward every single day.
Keaton is doing well—stronger in spirit, steady in progress, and praying right alongside us for a return to a little more of a “normal” routine come January. He’s hopeful to ease back into the flow of being a 15-year-old at school, prepping to take his drivers permit and celebrate all the Holidays - including Rex turning one next week
🦮 🧁 🐾
This season reminds us to pause, to breathe, and to be grateful—even in the hardest chapters. With Thanksgiving just around the corner, we’re choosing joy, choosing faith, and choosing to soak up every bright moment God gives us.
Thank you all for the endless prayers, support, and encouragement over the last year - from his very first Chemotherapy Treatment to Tomorrows 4th brentuximab session — we will have new scans in December to see how
Keaton & the tumor is responding.
📖 “Give thanks to the Lord, for He is good; His love endures forever.” — Psalm 107:1
A Prayer of Gratitude
“Heavenly Father,
Thank You for the sunshine, the small victories, and the strength You continue to give Keaton. We are grateful for family, for community, and for Your steady hand guiding us through this journey. As we approach another treatment and the Thanksgiving holiday, fill our hearts with peace, gratitude, and unshakable faith. Watch over Keaton tomorrow, surround him with healing, and bless the path ahead. Amen. “
🩶💙🩶🩶💙🩶🩶💙🩶🩶💙🩶
Rex’s 1st birthday is coming up in a few weeks. Hard to believe what all he’s accomplished this last year with Keaton. One of his favorite things to do is play fetch!! Keaton was given a chuck it ball thrower for his birthday last month & it’s the best thing ever. Rex would play for hours!!!
1 year. A lot has changed - from the unknown to where we just trust in Gods Healing Hands, Leaning into Faith & His perfect timing.
1 year ago we thought it was a virus or simply migraines, never once did we think it was a tumor. Let alone cancer.
A rare, progressive Malignant non-germinomatous germ cell tumor of the pineal gland - that changed our lives forever… to today. Where he continues to prove his care team wrong, showing up each day stronger than the last. Wearing a smile & cracking jokes of “it’s all in my head”.
To say this roads been easy. Cancer ain’t easy on anyone - but to wear a smile through most days, never back down or give up. Keatons showing what God & Grit can do. Each day is a blessing and a walking miracle.
With Rex by his side, we know he can accomplish anything he puts his mind too. Keaton continues to do occupational and physical therapy in between getting extra IV Fluids as needed.
We are thankful for each prayer, text, card, call, meal, (and yes mommas coffee) donation that has came through. Our community (online and rurally) has been such an incredible blessing to our family. It’s reminded me of being small town proud in multiple ways. While Keatons battle is far from over, we go confidently in the next phases of life 🤍
Ephesians 2:8-9: "For by grace you have been saved through faith. And this is not your own doing; it is the gift of God, not the result of works, so that no one may boast".
Dear Lord, I thank You that You will & have answered our prayers in Your perfect timing. Reveal what is in my heart, and make me ready to handle the answer in the right way when it comes. Help me to pray by faith consistently and long-term, to believe, wait, and then move forward in Your timing. Help me to be patient in prayer, not give up, and trust You even during moments when I feel negative emotions. I don’t want to live by feelings but by faith. Help me not to take matters in my own hands. I choose to trust you Oh Lord to lead the way.” -Amen
We celebrated BIG things this weekend! 🎂
346 Days Since Diagnosis.
2 Biopsy Brain Surgeries.
1 Red Heeler Born the Night of his Benefit.
1 Emergency EVD (External Ventricular Drain).
1 Ambulance Ride.
8 rounds of Chemotherapy.
2 different hospitals.
31 days of Radiation.
45 days of hospitalization stays.
2 maintenance trial treatments.
Countless blood drawls, scans, mris & appointments.
Hundreds of miles of driving & jam sessions.
1 Brave Kid + Amazing Side Kick Best Friend.
And A community that stands together.
All before 1️⃣5️⃣ Years old 🤍
Last week, Keaton had an “unscheduled” MRI to determine what the cause of his extensive nausea & exhaustion was coming from…. And I can *officially* say now that we’ve been told.
🧠 The tumor continues to BEHAVE. The radiation that was a Hail Mary - last option we had, worked! We knew going in, the chances but our God is an amazing one. Our God KNEW what He was doing the day Keaton gave his life to Him & chose to walk The Lords Path in his life. The radiation essentially stopped the tumor from growing & shrank it. And it continues to hold still (you may be asking … so. What does this mean?!).
💙 Long term? I have no clue. Keatons a rare one & it’s totally in Gods Hands at this point. Each Doctor is in constant amazement of how far Keaton has come since July — he proves them wrong at every turn. And for that we are grateful for.
🩶 For now, we will continue with our every 3 week treatment of Brentuximab & fluids as needed in between time. This stage is as close to being called “Remission” as we can get, because he will always have the tumor. It is entirely too risky to remove or have surgery. And we chose not to biopsy it, so not disturb it’s state of “behaving”. Brain Cancer doesnt come in *stages* like so many other types -
🙌🏼 The tumor is still only in his brain, and shows no signs of growth along the spine or any other area of his body! They will continue to monitor His AFP Tumor Markers, HGC levels as well as CBC and numerous other blood tests —
📆 Tentatively they will do another Lumbar Puncture & Full MRI mid November unless there is some sort of situation that suggests needing it done sooner. And his next treatment will be, 10.28.25.
As we all know, Gods in complete control & things can always change from moment to moment. And i am in a constant state of tired emotions, but this i know: "Thy kingdom come, Thy will be done, on earth as it is in heaven" from the Lord's Prayer stands true. Giving our hearts to the Lord; for Hes the only one who knows our true stories to come.
🫶🏼
“Help me Lord, to give control of my life over to You in every way, and to become the person You would have me be. Thank You Lord, that You have not given up on me and I ask You to teach me Your way from this day forward. In Jesus' name I pray, Amen.”
Matthew 6:9-13.
#StrongLikeKeaton
#BrainTumorAwareness
#rexandkeaton
Rex got a special bath from Scruffy Puppy while Keaton got cleaned up from his Aunt 🩶💙 both are enjoying today’s fall sunshine ☀️
💙🩶🤍🩶💙
Today was Infusion #2 of the maintenance trial drug, Brentuximab. We opted to start fluids yesterday along with IV nausea meds in prep for today’s treatment. Keaton received another round of fluids + IV nausea + the chemo today.
While it was a pretty “easy” day, we continue to leave Rex at home since he’s decided to be more of a “Teen” the last few weeks — while Rex does amazing at some things; handling the wheel chair, chemo treatment and an extremely small treatment room (where there are numerous other patients of all ages & going through all different stages of treatments)
Keaton usually opts to leave him at home for these days. So Rex, was pretty excited when we got home & helped me “unload” the truck while Keaton continued to snooze.
🐕
While these days look a lot of the same for Keaton & Rex (think lots of naps and movies!) I am thankful for the slower pace of fall & winter coming ahead…. Right now his counts continue to hold their own and stay steady —- we will know more at the end of this week. Ongoing, We will continue to do labs and adding fluids on Mondays as he needs them with treatment every 3 weeks (all tentatively scheduled for now).
While the future is unknown; we are thrilled to see Keaton starting to be more and more his sassy self again…. his work here is not done… you may start to see more videos of him & Rex as they tackle the next phase of life together - sharing their journey & path that God has created just for them. We will celebrate his 15th Birthday this weekend. A true blessing !!!!!!
His team continues to evaluate and watch several things going forward - the Brain is such a mystery.
🧠 *fun fact* 🧠—- did you know the Brain is made up of over 86 billion neurons and trillions of connections (synapses) create an incredibly intricate system that is why it can be challenging to fully map and understand.
Keaton has LOVED getting all the snail mail 💌 lately. It’s so amazing to see the cards, notes, prayers & verses that have come to mean so much to us. Thank you to each and every one of you who’ve taken time to send them!!!
🙏🏼
“Heavenly Father, thank You for Your perfect, sovereign timing. Help me to trust Your plan, even when I don't understand it, and to grow in patience as I wait. I surrender my timelines and anxieties to You, Lord, and ask for peace and clarity to hear Your voice during this season of waiting. May my faith remain strong, even when I feel weary or confused, and may I be prepared to act when Your timing is right. In Jesus' name, Amen".
#StrongLikeKeaton
#rexandkeaton
#healingheeler
#BrainTumorAwareness
#FIGHTLIKEATIGERk
We are forever thankful for Dr Ashley at Native Chiropractic & Wellness!! Keatons been going the last several years but for many, you may not realize how much she means to us.
Dr Ashley was who first noticed something being off last October when Keaton started having pretty severe headaches and not feeling well. If it wasn’t for her pushing us to get a second opinion & CT scan we might not caught his tumor until it was too late.
Today, Rex visited for the first time. He has been going back to school when Keaton does to start the re-socialization of going places with Keaton as a Service Dog In Training. Rex is one of a kind, bred out of our personal heelers, Ryder & Roxy. Bred to chase & work cattle while protecting us — but Rex has an even special-er job. He’s Keatons right hand buddy. Learning to navigate with Keatons wheelchair along with opening doors and being an extra set of eyes/nose to when Keaton starts gettng headaches & nauseated — so if you’re around Rex and he wants to smell your head just know he somehow taught himself how to smell the difference between Keaton’s tumor and everyone else —
Hes also, The ONLY outside service dog (who wasn’t through STL Children’s Hospital program) to visit His own kid during a PICU stay. He also had special clearance during Keatons Stem Cell Retraction in May. All before he turns 1 in November | Just as Keaton has went through more things than most do in their entire life time before he turns 15 in a few short days.
This morning, I find myself thinking about so many things. The good days. The bad days that have made us stronger & more resilient — more appreciative of the littlest things.
🤍💙
To be a Tiger…. This morning I’m thankful for so many things. The fact our school community adapts and moves around these kids putting them first each day. Keaton has had a pretty rough last few weeks from the new treatment. Lots of nausea & sleeping — just trying to let his body heal. However if you know Keaton. You know he’s not one to just lay around and be lazy.
It’s taken a toll on him this last month. As a parent you want the very best for your kiddo. But in the same token when Cancer is involved. It looks alot different.
So today, we choose to live. And be glad in it. Keaton woke up this morning. Feeling “Good” - so we loaded him and Rex up. And I left them at school for a while. While I would love to say that every day is easy, it’s not. Some days are better than others. We get a new sunrise each morning to start another day fresh. If I’ve learned any thing the last year. It’s this.
Live for each day | never take it for granted | Don’t go to bed in anger, find peace inside your heart; just as Jesus did. In a world full of hate ~ be the light. I am so grateful for the community we raise our kids in. The friends who are willing to step in even when I don’t know how to ask for help -
Next Tuesday (10.7.25), Keaton will go in for his second treatment infusion. We will be changing a few things; getting some extra fluids & IV meds to help combat the symptoms he’s having — we continue to pray that Gods Will & Healing Hands surround Keaton with each step he takes. We will also be scheduling an MRI as well { originally it was not scheduled until November} but with his past symptoms this month we want to rule out a couple of things.
💡 💡
“Dear Heavenly Father,
Thank You for being the Light of the world. You have called me to walk in Your Light and to be a child of the Light. Please help me to shine Your light brightly before others, not for my own glory, but so that they may see my good deeds and glorify You. Fill me with Your grace, mercy, and truth, that these may shine through my words and actions. Help me to reflect Your love in every situation and to be a source of guidance and hope to those who are lost in darkness. Strengthen me to live as an example of Your compassion and faithfulness, drawing others toward Your love. In Jesus' name, Amen".
Matthew 5:16, let your light shine before others, so that they may see your good deeds and give glory to your Father who is in heaven.
💛💙🩶
Life’s been a little slower the last couple weeks. Keaton received his first dose of the new drug, brentuximab last Monday (9.15.25) - and while this isn’t nearly as potent as the chemotherapy treatment he went through in May & June. It is catching up to him.
He’s not been feeling the best the last few days, which ended up needing some additional labs, fluids & new nausea meds with an extended period of “take it easy” resting!! Just like normal chemo, the new treatment does weaken his immune system — opening the door for a higher risk of catching cooties (as Jae would say). We went ahead and played it safe, by given him some antibiotics as well — because no one enjoys being sick or a flu bug.
So we’re just taking things a little more seriously; especially as we go into the Winter Germ Fest season. When weather & Keaton feels up to it, he’s been gaining strength and taking Rex once again for his walks - playing lots of fetch & these days taking up residence on the couch. We are thankful we can rest at home & not be admitted at this time. We may have to start monitoring fluid intakes depending on his next set of labs. Next Monday (9.29.25) he will have an LP to monitor some additional levels.
In the meantime, if you don’t see Keaton (or any of us) out and about — now you know why. Protecting Keatons immune system is top priority next to keeping his mental health happy. Keaton said while he can’t go enjoy things like he used to, he is open to FaceTime and video chats & loves getting snail mail cards (🏡 address at bottom of post)
They truly mean the world to us!!!
Thank you for the continued prayers & support along the way!!
💛💙🩶
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light"
-Matthew 11:28-30
🏡 Keaton O’Neal
(c/o Wieczorek Farms)
30940 Highway Y
Perry, MO 63462
What an experience!!!!!
⚾️ ❤️🏟️🤍⚾️
And we GOT THE WIN! Double Play to end the inning!
Keaton was selected among 7 other brave kiddos fighting the fight! Keaton was a part of the opening ceremony where he had a once in a lifetime moment, with the one & only Yadier Molina!!!!
Thank you so much to the American Cancer Society for having us down for the day at the Stadium. The kids got to meet several players (past & present) for signatures and photos. Getting to see The World Series trophy, sit in the dugouts & walk the track before the game!!
Such an amazing day, to see Keaton walk onto the field and stand at the catchers position.
Thankful every day for rural small town America 🇺🇸 huge shoutout to Hickman’s IGA … this is one of 2 of Keaton’s fav meals from IGA 💙🤍❤️
A living breathing miracle I get to call son 🩶💙 because yall. GOD IS SO GOOD. Joy, gratitude, goosebumps, and all the feels….  grab a Kleenex.
🤍
GOD HEARD our prayers, God lead us to this very moment in time … He KNEW the future we just had to LET HIM work. Let Him lead us.
For today and everyday it is HIS WILL, His Way. And I firmly believe the day Keaton gave his life to serve God and be baptized, that God said “Son I need you to teach others what I am” … and we are here living every single day being thankful for the life we have been given.
Today, September 2nd — 65 days since Keaton’s baptism…. We received the best news. The Radaition did exactly what we prayed it would. It SHRANK his tumor & put a hurting on it. For the first time in months, they seen a POSTIVE change in the size of the tumor. And his numbers are “normal” like one was 1000 in July, and now is 3!!!! They will do another LP test in the coming weeks to confirm we are still in a good place.
On September 15th, Keaton will start a new clinic trial drug…. This will literally be trial by the grace of God — it could do more working powers or it may not do anything at all - but it’s the path Keaton & his Doctors feel are the right move going forward. He will get numerous cycles (how many have not been determined yet, Keaton health + counts & the tumor will lead this journey). They will be short outpatient infusions at STL Children’s - however it will compromise his immune system going forward so we have to be careful & cautious (especially going into  the lovely winter cooties months). As of right now, it’ll be every 3 weeks.
Gods love, and mercy surround us all. It’s when we open our hearts and eyes do we see His true presence. Miracles happen every single day. Keaton and I have talked about ways to “share his testimony”… and for now, he simply tells everyone the same thing. He was put here with Gods Purpose & He has some pretty special Angels watching over him.
“Dear Lord,
Thank you for the many blessings you have given us. Thank you for your unconditional love and support that sees each and every one through every challenge. I am thankful for my family and friends who bring me joy and kindness every day.
Help me to live with a spirit of gratitude, recognizing your hand in all things and trusting you in every moment going forward. Amen.”
#StrongLikeKeaton
#BrainCancerAwareness
#cantbestopped
#itsallinmyhead
September is Childhood Cancer Awareness Month 🎗️
Tomorrow is one of the hardest days I’ve been waiting for. The last few days of awaiting results from the LP, labs & MRIs and trusting in Gods Healing Grace.
2 months ago, we didn’t think we’d have Keaton here today. Defining every single doctors’ thoughts on the PICU floor in July. Yesterday we took Rex for a walk & he felt like riding in his tractor for a few rounds of raking behind the house.
A year ago looked so much different. We had different ideas and perspectives for the farm, for our business, the kids had their own goals going into fall as our busy season slowed down.
Then life shook us …
Keaton continues to defy all odds, walking - gaining strength - being an unknown hero to so many. He reminds me daily his purpose here is solely through God for others to learn from. A walking miracle who shows no fear at the end of the day.
They say kids have an ability to push through without even knowing they’re doing it - breaking rules & testing limits. The “c” word is nothing I would wish on anyone. God doesn’t want us to battle cancer. It’s not His wish for us to be sick - but He does ask us to Trust in Him, Lean on Him, Call on Him in our time of need. Keaton’s faith has never wabled through all this. Not when life changed our path & plans in May. Not when we received the news that additional chemo didn’t even phase the tumor in June, not when we nearly lost him in July.
💛🎗️💛🎗️💛🎗️💛
This month, I ask for special prayers for all the families affected by cancer. The ones here fighting the fight, the ones who gave everything they had, and God still called them home too early. And the ones who will be affected down the road.
Keaton reminded me again this morning, tomorrow will come regardless. No need to cry & stress over something we don’t know yet… and if he can be that strong. So can momma.
I will have a new update later this week from tomorrow’s appts and plans going forward. We truly cannot go through life without the love & support our community has shown us {online and in our rural area!}
“God, I come to you today because I need your guidance. I am facing a situation where I feel overwhelmed and uncertain. I ask for your wisdom to help me see the path ahead more clearly. Please help me discern your will and show me the steps I should take. Give me the courage to move forward, trusting that you are leading me. Help me recognize your voice amidst the noise and distractions. I trust that you have a purpose for me, and I ask for clarity in all my decisions.” -Amen.
Psalm 107: 1-3
Give thanks to the Lord, for he is good; his love endures forever. Let the redeemed of the Lord tell their story— those he redeemed from the hand of the foe, those he gathered from the lands, from east and west, from north and south.
9.1.2025
#StrongLikeKeaton
#braincancerawareness
#childhoodcancerawareness
#FIGHTLIKEATIGER
#healingheeler
#keatonandrex
Today is a big test day …
🩸 Labs
🥼 HEMCO Visit
🧠 MRI
🦴 Lumbar Puncture
🩶💙🩶💙🩶
Keatons strength continues to improve each week - gaining more mobility & muscle along with the use of his left side again. He’s feeling a lot more himself but still tires easy.
We are so incredibly thankful for the prayers & messages of encouragement from our community of supporters. We know that everything is in Gods Healing Hands; continuing to let Him be in control. This mommas tired heart, asks for an extra prayer as we anxiously await results over the next several days before our follow up appointments next Tuesday.
🙏🏼
“Father God, in this moment of overwhelming thoughts and emotions, I turn to you. You are my refuge and strength. Please grant me peace and clarity in the midst of chaos. Help me cast my burdens and worries upon you, knowing you care and protect us.”
-Amen.
#StrongLikeKeaton
#braincancerawareness
Last night was Lil Sis Youth Football Jamboree 💙🤍
It was such a blessing to see Keaton walk through the fans & sit in the stands. The little things you take for granted, seem to become BIG things within moments - when your life changes.
👣 👣 👣
Walking & Steps have been a challenge for weeks, but in the last week he’s been tackling some big things. Parking the wheelchair for the most part. Building his muscles back up slowly and surely. Focusing on his mental health as much as his physical strength.
We are finding some things more challenging {like Algebra and relearning things} but it’s not a “I give up” … it’s not a setback. It’s a “I’m still here” statement.
This week’s scans on Thursday will help to determine the next phase of treatment for Keaton. Please continue to pray that the Radiation did its set job of “stopping the tumor from growing”. Keaton continues to remind me and others, he was put on this Earth with a purpose. To help educate others on this rare type of tumor. He’s been given some amazing gifts in his short 14 years of life.
Wise beyond his age - more mature than most - understanding what many adults can’t grasp - tackling a life threatening disease with dignity & grace instead of hating the world…. All while growing a beard!!!
We are entirely thankful for so many things this Sunday morning.
"Dear Heavenly Father,
We come before You with hearts full of gratitude for the past week and for the gift of this new Sunday. As we prepare for the week ahead, please grant us peace and calm our anxieties. Fill us with Your wisdom and discernment to make good choices, strength to face challenges with courage, and love to share with those we meet. May Your presence go with us, guiding our steps and blessing our hearts with Your grace. Help us to trust completely in You, knowing that You are with us through all the joys and difficulties of the week. May this day be a time of spiritual renewal and connection with You, preparing us to live in faith, hope, and love. Amen."
💙🩶🤍💙🩶🤍
#StrongLikeKeaton
#braincancerawareness
#FIGHTLIKEATIGER
💙🩶💙🩶
Freshman year. The start of a whole new chapter. And while it’s not what we expected- we are thankful for the district & rural community we live in!!!
Keaton still gets to be a part of his classmates meetings & shanegangins. While he’s currently enrolled through LAUNCH (online courses for now) I am grateful for our Governor who recently passed the new bill allowing “homeschool students” to still participate in extracurricular activities (FFA) and sports (he’s going out for the Golf Club in Spring a new program for our district!)
While we won’t know the “next phase” until September - we’re on the right path for now. His smile & jeans says it all.
💙🩶💙🩶💙🩶💙
Upcoming Appointments:
• 8.28.25 - Labs, MRI + LP
• 9.02.25 - Meet with our HEMOC team for results & set next phase of treatment.
In the meantime he will continue seeing PT & OT while we get stronger at home doing exercises and utilizing his pool, throwing balls with Rex & trying to keep up with sis.
#StrongLikeKeaton
#BrainCancerAwareness
#fightlikeatiger
RAD ONC GRAD 🎉
💙🩶💙🩶💙🩶💙
286 Days since being diagnosed with a rare Progressive non-germinomatous germ cell tumor of the pineal gland consistent with embryonal carcinoma (NGGCT) - aka
1 in a Million “Brain Tumor” …
46 days since his episode that landed him in PICU.
29 Days of Proton Radation Therapy.
🎉🎉🎉🎉
God does not lead us astray, and while He shifted our paths in July - we know we are on the best path for Keaton going forward. "Do not be led away by diverse and strange teachings." Hebrews 13:9 ….
Today He rang the Bell at Siteman indicating his completion of RT. While we still have to await for the “next plan” after his MRI + LP on The 28th…. Seeing him walk into these appointments has been humbling & a strong reminder of just how far he’s come in a few weeks.
Prayers work. God listens & He Heals, we just have to trust in the process. Today we have much to celebrate!!!!
🎗️🩶🎗️💙🎗️
#StrongLikeKeaton
#braincancerawareness
They say a picture is worth a thousand words …. But what about a video!!!! ?? { because I know I sort of left yall hanging last week. Not intentionally, but a friend constantly reminds me…..
*NO NEWS is GOOD NEWS*
🩶💙🩶💙🩶💙🩶
Today (8.11.25) marks a milestone - the first time he’s walked solo alone down the hall to Radiation. After today, there’s only 3 more 8:50am Radiation Appointments. On Thursday he will ring the bell down in the Proton Room, signifying his end of the 35 Days of Radiation Treatment & our daily trips to STL.
🩻 Each Monday, we come he has CT scans before RT & we meet with our RAD ONC, Dr Perkins. She’s constantly scanning and watching for any sort of fluid/pressure building back up. And God heard our prayers ❤️🩹
💉 Every Tuesday, we follow up our RT with a trip to HeMOC for labs & a visit with the team - we’ve continued to see numbers come downward & show signs of improvement!!!! His blood tumor markers have been a huge watch from 100s at the beginning of July to being in the teens last week.
🦽 He continues to show more strength every single day. Ditching the wheelchair as much as possible. During the week, he sees his PT & OT teams multiple times. He’s told them numerous times these wheels are a rental for a reason.
🩺 While this is the last week of RT, he will continue to come back down to STL for weekly OT+PT apts, meet with the Rad-Onc & HeMOC Teams and lab drawls. We will have a scheduled MRI + LP on August 28th — there is a new type of drug that is in a “research” phase for the type of Tumor he has. We have to wait for his platelets & counts to be a certain number before they are willing to start that treatment along with scan results.
🫶🏼🙌🏼
While we know that each day is a different day, we know God is in full control. We trust in Gods timing & Plans…. Our lives changed November 1st when we were first told it was “cancerous”. But on June 29th - it changed our mindset completely.
I kept thinking this weekend how far he’s come. How many people he’s proved wrong - how many people continue to find God, and Pray for my sweet boy — one of the hardest working kids I know.
And while everyone else is gearing up for school next week, he’s focusing on the next chapter of his life. Taunting his new teacher (aka his momma for now) — telling us how to run his equipment from FaceTime on the couch. Making way for others down the road | Reminding us hard things make tough people; because we can do ALL THINGS through Christ.
✝️
#StrongerTogether
#braincancerawareness
#allthingsarepossiblewithGod
Monday Madness …..
Keaton has another full and busy week. Starting today off in full speed.
CT + RT + OT + seeing Dr P (Perkins) his RAD Onc Doc.
Yesterday was a true testimony of walking with God & leaning on your faith. Last week at church Keaton made it a mission to walk through the doors when Pastor Brian was back from their Mission Trip…
I’m not sure who was more happy to see the other. Keaton continues to improve each day. From taking more steps, being able to use “lefty” more and more, and becoming less dependent on Mom to help do things. Before long he’s going to be climbing back into his own 5S.115. He told Jason his plan was to be able to help in September during second cutting. He’s only been able to help us 1 day in the field earlier this spring & I am thankful every day that he still wants to farm even on the hard days.
July has been a blur of running on caffeine (a special thank you to those wonderful gals keeping my heart bumping by iced coffee’s 🧋🧋) and lots of miles on the Chevy. One day I may look back & be able to reflect. Sharing Keatons testimony to more than just his Strong Like Keaton or my own personal blog page …
But until then. I will keep posting here. And being thankful every single day. Because miracles happen, I have one riding shot gun daily.
💙🩶🧠🩶💙
15 Days of Radiation left 🎉
Freshman year to conquer 🐅
Joining a new team ⛳️
Back to driving his 5S 🚜
A walking miracle that 20+ days ago, I was told…. Would not happen. That we would take him home and keep him comfortable. Our time was limited - That he wouldn’t be the same again, he wouldn’t be able to walk the same, wouldn’t be able to be “Keaton” in the same sense that he was when he declared his life to God.
But in true Keaton fashion, he’s proved every single doctor wrong along this path.
Today, for the first time since he walked & got into the truck on Sunday, July 29th to go to church service… he walked by himself to the truck this morning. He got dressed on his own.
Faith can MOVE mountains. Keatons proof every day.
Gods timing is NEVER going to be OUR timing.
The last 22 days seem to be a blur ~ of hitting my knees asking God for guidance, asking him for strength & healing. Seeking Him in all ways. I have lost weight, lost hair, lost countless hours of sleep. But to stop & hear Keaton say “look at me now” ….
Keaton & I both know he has a testimony like no one else. He’s made numerous comments stating he was going to be what others learned from. From the medical team closely researching & watching his tumor to the followers right here. Who’ve never met him. But may have learned who God is over the last 8 months. This is a true blessing. And we couldn’t of done any of this without the praying warriors supporting us.
This week’s results, continue to show that the tumor is *stable* - that it is no longer bleeding and that his ventricles are open & flowing as they should. He has roughly 18 days left of Radiation - - while he’s also making leaps and bounds of checking goals off with PT & OT
Celebrating another week of radiation completed!!! Of course we needed our sidekick nurse Jae with us. She’s become his professional “pusher”.
Yesterday’s MRI showed that the bleeding in the tumor has stopped, as well as the ventricles being “open” & the fluid is flowing as it should. Not causing concern for any extra pressure on the brain right now.
Today he started the longer version of radiation, lasting about 35 minutes instead of the last 10 being about 15 minutes long. He’s pretty tired each day but so far handling treatment well.
Next week he will conquer Physical Therapy to help strength the left side as well as Occupational Therapy for those fine motor skills in addition to daily radiation therapy.
Each day I see more and more of the Keaton we knew before all this happened. It’s hard to wrap my mind around at times, the few very scary days we went through at the beginning of this month. Every trip we make back and forth from the house to STL I am thankful. This whole month was “supposed” to be inpatient with him not coming home. And not having visitors.
For whatever reason, God changed our paths. He directed us down this other road. And for that I am entirely grateful. It’s not been easy. But it continues to bring us closer to Jesus & each other.
“Let your eyes look directly forward, and your gaze be straight before you. Ponder the path of your feet; then all your ways will be sure. Do not swerve to the right or to the left; turn your foot away from evil.” Proverbs 4:25-27
“And your ears shall hear a word behind you saying, ‘this is the way, walk in it,’ when you turn to the right or when you turn to the left” (Isaiah 30:21). This verse talks about walking a path. Sometimes we come to a fork in the road, and we don’t know which way to turn. But we can trust His voice, His Word, to guide us. We are never to swerve to the right or the left, which, according to the verse above, can turn our feet toward evil. We are never to lose sight of this path by allowing distractions to get in the way of seeing it clearly.
🫶🏼
Ralls County Junior Fair has come to an end. And what an amazing and truly blessed sale day. I’ve sat for the last few hours thinking how much our community has done for us.
Not very often do I sit down & not have “words” to put together. To be in a complete state of shock and awe, still this morning.
A Show calf that has earned his place in the pasture for the time being. “Bandit” is a reminder of how hard life can be at times, the ups and downs. Hardships & triumphs. Taking the good days along with the bad. Breaking livestock takes work every day. It’s not one of those things you can just sort of “throw a halter on” and walk into a ring of people. ESP when they outweigh you by 1000 pounds.
Keaton’s cancer journey has been one that has brought so much light to the world. Not just in our small town community. But all over the world. Social media does that. One post goes viral and instantly “famous” happens. But instead of soaking up the spotlight or struggling with the diagnosis. He’s instead constantly being a force for Good. Proving hard work, grit & determination to get better - to beat cancer. To have Faith & Trust in Gods Plans; even when the rest of the worlds given you advice. Gods asking us to trust in Him - his unconditional love
15 days ago. I never thought he’d walk again. We were told, something completely different. We’d almost lost hope. But Keaton didn’t. He’s not done. Gods still using him each & every day. His strength is what fuels my days. Even when I want to sit down and give up. He’s not. He’s a true inspiration.
Thank you to each and every person who’s been a supporting hand since November 1st.
Our families hearts are overwhelmed by the love & support. If you have photos and anything from the sale last night, please send them to me. So that I can add it to Keaton’s memory book.
There are no amount of “thank yous” or Hand written notes, to express the overwhelming amount of gratitude & feelings i still have this morning —
Putting into words; has been hard.
Keaton still has such a journey ahead the rest of July. Daily trips to St Louis for Radiation, as well as both occupational & physical therapy. Thursday we will have an MRI to see if the tumor is responding at all to the radiation treatment that he has received the last week
Saturday was a busy one. From the Lions Clubs 1St Annual SxS & Golf Cart Poker Run to getting the show calves washed & hauled to the county fair.
2 weeks ago, life looked a whole lot differently. Keaton and I were trying to prepare for a month long stay at the hospital. Talking multiple times about mom being gone a few days to help prepare Jae for the fair & the cattle show. Keaton giving her strict instructions on how to show Bandit for him since he would be going through his round of chemo leading into his stem cell transplant.
2 weeks ago, our life’s changed drastically in a matter of what felt like the longest hours of our life. Uncertain of the future and what it held. But isn’t that where God wants us to be?! As Christians turning to Him in all aspects of the day. The good to the bad. And during the scary moments coming to our knees asking Him for Guidance. Seeking His Way & Timing.
I didn’t think it would be possible for Keaton to make it to the county fair last night. But he did. He continues to improve each day. He even made it out to the ring with a little push & shove along the way to watch his momma set his calf, Bandit up for the judge - where he won Grand Champion Market Steer {his steer will be for sale on Monday evening at the Ralls County Jr Sale}.
Thank you to each and everyone who participated in yesterday’s 1st Annual Perry Lions Club SxS & Golf Cart Poker Run, the silent auction baskets, donations & support from our community. A special thank you to Dalton, & those who helped us last night during the Cattle Show where I was managing 4 cattle & 2 kids — it was a blessing to make it. Even if in the chaos of it all - - we didnt think we’d even get 2 calves there a few weeks ago.
Each day is one I no longer take for granted…. Every memory. Every “mom” I hear. I will continue to cherish it more than I ever have before. Taking the pictures. Giving the hugs, holding each kiddo a little extra.
This week is another full 5 days of Radiation (Daily) plus Keaton has Occupational & Physical Therapy scheduled. He has an MRI on Thursday to see where things set since the EVD was removed & radiation started. We will meet with his oncology, radiology & neurology surgeon as well this week.
We continue to ask for prayers for Keaton’s strength to keep improving, that the radiation will jar the tumor enough to quit growing & for our family as we keep pushing forward.
"Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you," Deuteronomy 31:6
They say it takes a village to raise kids …. And I firmly believe that. To everyone who’s helped us out - thank you from the bottom of my tired momma heart. ♥️
This kid has been up & going since 4:30am this morning. Today was his 4th Radiation Treatment. Thankfully so far he’s handling It like he does every thing. Like a champion.
Every day he takes more steps and I see his “old” Keaton self coming back. Tonight he insisted on getting cleaned up & dressed to go to the 4H Project Judging for the Fair.
Tomorrow we go back again in the morning for his 5th Treatment. Next week is jam packed with MRI, Nuero & Oncology Apts, OT & PT plus Radiation Therapy.
God is so Good and Keaton’s a working Miracle - we still have a very long road of physical therapy to regain his left side function { Learn to Walk Again! } combined with radiation therapy that we continue to pray helps put this tumor into a state of shock.
💙🩶💙🩶💙
The very best thing we did was advocate and believe he’d do better outside of the hospital. I am no nurse let alone doctor but I do know that Keaton responds best on the farm. I am thankful in so many ways this Monday morning as we took a stroll down Y.
I was hit with so many emotions and feelings. A week ago, this wasn’t even on the table - Keaton continues to prove to doctors he’s not done here, that his purpose is far greater than any of us can imagine..
While we know that life is short & precious. Our external home will be far greater than the life here on Earth but we will cherish each and every day. Choosing joy & smiles. Even when it’s a Battle. Because our God is a faithful God. And we choose to walk His Path not ours.
God works in mysterious ways - - I keep thinking, how this all started. At church. Right after Keatons Baptism. The right time and place for His Care.
This week’s goal is getting to STL for 3 days of Proton Therapy & at least 2 Days of Physical Therapy. Keaton also wants to go to the Cattle Show Saturday Evening to watch Jae show his steer, Bandit. (This is a Huge step. Because if we would have been doing the original plan of Chemo + Stem Cell Transplant he would have been admitted and inpatient the whole month of July. Missing the fair completely.) We take each day step-by-step; stronger than the day before!
#StrongLikeKeaton
God is So Good and the Prayers have been answered.
This week’s been hard - the hardest week I’ve ever went through as a mom. My Faith has been tested … I’ve had numerous people ask me how I’m still going … and my reply has simply been “God & the fact that if Keaton is still fighting. So am I”.
We still have a very long road ahead with Radiation & Physical Therapy. But we were able to be discharged today & that was the biggest blessing. We are staying closer to STL for now just to play it safe for a little while longer. We are so very thankful for the multitude of people in our wheel house that have been gracious enough to add extra support as we continue to keep Keaton comfortable, recovering, healing, but mostly happy. He’s been through the wringer & I can’t even begin to imagine what’s been rolling inside his brain the last 6 days.
He’s the toughest person I’ve ever come to meet. He continues to prove to the doctors he’s stronger than others. 5 days ago this wasn’t even a possibility. But with all of your prayers. We are here. We are battling this tumor. We are pushing on & fighting with everything Keaton has. He has big plans and goals to hit but every day is one day better than the last!!!!
Peep what started his “sock collection”. Some silly Mustache socks 🧦 that had been laying around in Josh’s drawer 🤣
This weekend we pray for strength, patience, and rest before next weeks appointments start again — the Plan Is to be outpatient for his daily radiation treatments as long as hes tolerating each day & the pressure on his brain doesnt affect him.
Thank you doesn’t seem enough — but I just Know God has huge plans for Keaton; to touch peoples lives & show them the Lords Will & Love —- and that miracles happen every day.
#StrongLikeKeaton
Gods working Miracles that none of the PICU floor thought possible a few days ago.
Prayers are working. God is so Good. Is it going to be perfect & easy …. Absolutely not. It’s going to a very hard road. But he’s tough. He’s a true warrior. A fighter.
Today his second MRI continues to show that he didn’t need a surgery to put in a more permanent shunt & he had been stable enough with the pressure & fluid that they removed the EVD.
He also was able to go down to STIM and be fitted for his radiation mask. Dr Perkins is moving mountains (I firmly believe this is Gods doing) to start treatment tomorrow (4th of July!) radiation is closed on holidays & weekends yet we are getting a treatment tomorrow & again on Saturday morning!!!
Keaton was able to get up out of bed numerous times today (with help) and get out of his room. Jae even pushed him around in his new wheels. This road is hard to navigate because there are so many unknown factors. This evening we also was able to leave the PICU floor and be moved to a regular room where in hopes that Keaton would have a more restful night leading into tomorrows first radiation treatment.
We will continue to stay admitted through Saturday - the end goal is to get discharged that day & Keaton able to rest more comfortably outside of a hospital room & busy nurses for a couple of days —- however. It is entirely day by day. How Keaton is feeling & responding to how the doctors feel Keatons able to handle not being under watchful eyes.
Thank you to each & everyone of your prayers. God hears them. Gods plan is far greater than ours ever could be. We know that miracles happen daily & Keaton’s already a 1 in a Million —
I am incredibly proud of sis. Thankfully Jason’s been able to be over with us daily bringing Jaelyn. She’s helped a lot with just being in the room. From folding blankets, coloring pictures for his windows, to helping him get drinks & even he felt safe enough to let her push him around a while today!!
#StrongLikeKeaton
A special clearance was awarded this afternoon for Rex to make a visit to the PICU (apparently one of the only ones to do so) —
An update that has been probably the hardest to write & wrap my mind around. Keatons MRI from Monday did not give us some of the results we had been praying for. It has been an extremely hard & emotional roller coaster.
But Gods not done yet & neither is Keaton. Our Radiologist came in yesterday afternoon with a Hail Mary & a plan to attack the tumor / / This afternoon he had another MRI, to check on the EVD & fluid buildup. They will do another one tomorrow morning to determine if the EVT can be removed or what the next step looks like. We also have an 11 with Dr Perkins to start the process for radiation treatment.
Each day we have Is another blessing. No day is ever guaranteed. Life is too precious and short.
We continue to pray for healjng and peace with Keaton. We ask for special prayers especially for Jae as we continue to navigate the unknown going forward. We pray that the tumor reacts to the radiation the way that Dr Perkins envisions.
We are thankful for the nurses & medical team here at STL Children’s / while we miss our friends at MU - we know deep down we’re exactly where we need to be in the moment.
“Trust in the LORD with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight.” amen.
A constant reminder that no matter how good a plan it is - our plans are not always Gods Plans. Or on His time.
Yesterday Keaton chose to give his life to God, accepting Christ into his heart & be baptized. They always say the Devil comes harder at the ones who serve the Lord.
Shortly after, Keaton was not feeling himself. Thankful for where and who we were with at church yesterday. Some quick thinking & making calls to our STL Team landing Keaton getting to have his first ambulance ride. I remember, He told the EMT Joe to “put the hammer down”.
🩶💙🩶💙🩶
It has been a whirl end of almost 24 hours.
To keep it extremely brief — Keaton needs all the prayers for strength and healing but also his neuro team need guidance. The tumor is not making this an easy task to “fix”. It’s putting too much pressure on his brain & the fluid has built back up.
They did an emergency Endoscopic third ventriculostomy (ETV) last night. He’s starting to be more alert & responsive with every neuro check - They have scheduled an MRI at 11:15 this morning to give us more guidance on what the next step is now - but essentially Round 9 of Chemo & the SCT Is on hold —
At the moment, he’s sleeping. And that’s what his Brain & Body need to heal. He is in PICU at STL Children’s - and we are very limited on who can visit right now.
Please know if you send messages I am shifting through them but I may not respond back. But they mean a lot. Prayers and Miracles happen every day.
Gods Plans for Keaton are far greater than I could have ever dreamed for him -
🫶🏼
“Our Father, who art in heaven, hallowed be thy name. Thy kingdom come, thy will be done, on earth as it is in heaven. Give us this day our daily bread, and forgive us our trespasses, as we forgive those who trespass against us. And lead us not into temptation, but deliver us from evil. For thine is the kingdom, the power, and the glory, for ever and ever.” - Amen
The last several days have been a mad dash for momma to get as much done in a short window of time before Admission on Monday, June 30th.
Keatons spent time hanging with his best friend, Clayton { peep the photo from when they were little!! } and spending as much time as he can with Rex & Jaelyn.
🩶📦 🫶🏼📦 🫶🏼📦 🩶
Every day our Mailman brings by more boxes & packages and it’s a constant reminder that we’re not walking this path alone. And I am forever grateful for that. There are no words and amounts of “thank yous” and “thank you cards” that could express the amount of emotions I have this morning as I start to pre-wash, and pack up things for what’s ahead.
One of his nurses, told us to think of his hospital as a “dorm room”. Making it feel as close to home as possible. You guys blew me away with the love & support with his Amazon list. As the days turn into weeks at STL we may continue to add things as he needs them.
We have no “end date”. Each and every day after his stem cell treatment will be based on how Keaton is feeling. Visitors will be limited due to his low immune system the first 2 weeks. But hopefully towards day 15-20 he’ll be able to see a few more people. Unfortunately Rex cannot go with us nor can he visit during this admission. We ask for special prayers for Sister & Rex — this stay will be the longest that they have been apart from Keaton.
Keatons as rare as his tumor - a true 1 in a Million … still continues to laugh, crack jokes, enjoy life & telling Everyone in his path that Gods got this & hell see everyone when this is done - If everyone had His Faith, the Devil wouldn’t know what to do with himself -
"The Lord will fight for you; you need only to be still."- Exodus 14:14
I will continues to update as best as I can going forward. Knowing that these will be the hardest weeks we go through. We pray for peace in our decisions as a family, guidance for our nurses, doctors & medical team, we pray for complete healing and strength for Keaton -
#StrongLikeKeaton
💙🩶💙🩶💙🩶💙
This upcoming week will be a lot of rest, hydration & just mentally preparing for what’s to come for Keaton.
Tomorrow will be a long day, as he is scheduled for tests for his hearing, liver & kidney functions. We were originally set to start his Induction & Admission tomorrow but it was pushed back until the following Monday, June 30th.
There are a lot of “unknowns” surrounding the simple facts. But he’s choosing to push on & fight - - so we’re going to rally & fight with him.
Cancer is not something any one person wants to deal with let alone a child - who doesn’t act or look like he’s fighting life with a rare 1% Tumor { peep his ongoing smile with Rex }.
Rex will no longer be able to travel & stay at the hospital during the daily cycles of chemo + the stem cell transplant | Lil Sis is on “doggy duty”. This will be a huge adjustment for all of us, as Jae & Keaton have never been separated for more than a week, so asking for a few extra prayers for sis as she learns to navigate this path too.
I will post Keaton’s room number & the address at the hospital for those who want to send him cards directly there as his admission will range from 30+ days until he’s stable and well enough to come home. It really depends on how He is doing regarding how long his stay will be at STL.
We have put together a small Amazon list of things he could use during his stay, as he will be in a separate area due to the stem cell transplant (Think ICU on steroids!). He will be limited visitors, but will have his new iPad for those who want to reach out & talk to him.
Thank you from the bottom of our hearts - the last 8 months have been a dirt path full of potholes, mud slides, new gravel, and what felt like an earthquake last week - but Keaton is walking it with his head held high & the heart of a true Warrior.
His favorite Bible verse has became our anthem, Romans 12:1 - in which It talks about God giving His Strongests Warriors the Toughest Battles. ⚔️
Always wearing a smile & trying to joke - even on the hard days. On Friday we traveled back to STL to start a slew of tests in preparation for the next round of chemo + stem cell transplant { tentatively to start admission on 6.23.25, but that date is still iffy depending on how his counts are by the end of this week }.
I’ve probably “downplayed” a lot of what’s happened the last couple of months, because at the end of the day. It’s hard to come to terms with the fact he has cancer & a brain tumor. To see him & be with him daily - you’d never know!! [outside of him being extremely tired & nauseous after the Chemo treatments]
He likes to laugh it off, “it’s all in my head”. And truly it is. The brain tumor is the only thing causing him issues. He told me on the way down, that Friday the 13th was going to be the lucky 🍀 one - because they don’t come around very often.
He had a MRI + Lumbar Puncture along with ECHO, ECG/EKG. Tomorrow we have to cover the Kidneys+Liver and his hearing. We will know more about the results of these tests in the coming days giving us a better plan & path ahead.
When he becomes admitted he will be on the transplant side of STL Children’s. We can no longer take Rex when this happens due to extra safety precautions. It will also limit the possibility of having a lot of visitors | however with his brand new iPad he can FaceTime & still keep in touch. We are already working on keeping him as healthy as we can, by trying to limit his exposure.
It was suggested that we make a list of things we will need for the transplant admission (he will be admitted with a minimum of 20 day up to 6-8 weeks depending on how he is doing. His body will dictate each step along the way). Keaton will get what is called an, Autologous stem cell transplant: we collected his own blood, which was then harvested and froze for them to place back in through IV on day 7 of Admission (5 days of Chemo).
He keeps reminding us, it’s one season. He’ll be back to normal next year. We can all do hard things for a season.
🌱 Ecclesiastes 3:1-8, "For everything there is a season, and a time for every matter or purpose under heaven."
This is been one I continue to come back too. It emphasizes that life is a series of different seasons, each with its own purpose and timing. I keep praying, and seekingn God as we navigate the ups and downs of life, finding meaning and purpose in every experience.. for there is a greater purpose for this journey we are working through.
A very special thank you to Shari Bell and the Kesler family who helped gather goodie baskets for Rex & Keaton {and a special gift bag for sister too!!} and cards from wonderful people in our community. Keaton & Rex went through the cards - so many of them were puppy themed and we all got a good laugh trying to see how many of them looked like Rex!!!
💙🩶💙🩶💙🩶💙
Keaton did not make counts Tuesday, so they pushed off chemotherapy earlier this week as originally planned. This morning the boys went to HRMG and did labs in Hannibal. When we got the “all clear” we traveled down to STL.
Keaton has been admitted & waiting for the next 3 bags of chemo to start over the next 6 hours today. Today I specifically ask for prayers for healing. Last round really took a hard hit on Keaton - making him feel pretty sick for a while. - we will have follow up appointments next week to discuss MRIs & Stem Cell Transplant Schedule.
“Heavenly Father, I come to you in prayer, knowing that you are the LORD who heals (Exodus 15:26). I ask that you take away sickness, infirmity, and pain from Keaton and restore him to health (Psalm 103:2-3)."
#stronglikekeaton
#keatonandrex
#healingheeler
#braincancerawareness
The last day of school looked a little different than any of us could have even began to imagine. This morning we left sis to get on the bus the last time as a 3rd grader and we headed back to St Louis Children’s hospital for another hospital admission and 3 new types of chemotherapy.
Today’s agenda - 3 chemos over the next 6 hours. It’s going to be long day but their goal is to hit it hard and hopefully send him home tomorrow afternoon or Thursday !!!
🩶💙🩶💙🩶
#stronglikekeaton
#braincancerawareness
Each day is a blessin’ and we’re jus * L-I-V-I-N * the best we can. Junes going to be an extremely trying time. But I know through Gods healing hands, our trusted team now at STL Children’s, Keaton’s determination and perseverance — he’ll come out of this on the other side!!!
From labs + fluids today to the ball field tonight - it did us all some good to be surrounded by good friends!!! There’s been a lot of things Keaton’s had to miss or sit out from the last 7 months & that’s hard. Watching him miss school events, practices & games - to now His favorite time of year .. Hay Season.
But it’s only 1 season. 1 trying season leading to an amazing testimony & comeback ….
💙🩶💙🩶💙🩶💙
#StrongLikeKeaton
Another round said and done. 6 hours of steady chemo made for an extremely long day for everyone. Keaton was able to come home Wednesday morning and has spent the last few days resting in bed with Rex.
To watch this tough kid get hit so hard …. Isn’t easy. But he continues to fight and push on. So that’s what mommas gunna do too.
He has some pretty rough days ahead in June. A lot of uncertainty comes with those - a lot of mixed feelings of “are we doing the right thing?” A lot of hard feelings and big emotions surrounding this next month ahead.
Tentatively scheduled he will go back for a second 6 hours (3 different types of chemo) in a single day round on June 3. A lot of tests to come on the 10th leading into a hospital stay for more chemo combined with the start of his stem cell transplant. June is always a chaos of running nonstop. & I just have to pace myself looking ahead.
God wants us to look ahead and not get stuck in the past. In the Bible, Philippians 3:13-14 says, "No, dear brothers and sisters, I have not achieved it, but I focus on this one thing: Forgetting the past and looking forward to what lies ahead, I press on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us". Proverbs 4:25-27 also says, "Let your eyes look straight ahead; fix your gaze directly before you. Give careful thought to the paths for your feet and be steadfast in all your ways. Do not turn to the right or the left; keep your foot from evil".
So that’s what we’re doing. Putting one foot in front of the other. Trusting in Gods timing, presence & knowing there’s a journey along this dirt path we’re on. Keaton & Rex now continue to share his story & how he’s changing lives every day — even when he’s never met half of the people who’s praying & rallying behind him!!! May Is Not only National Mental Health Awareness Month but also #BrainCancerAwareness Month. And we’re doing our part in sharing #StrongLikeKeaton story + The Heeling Heeler Rex -
🩶🧠💙🧠🩶
#healingheeler
#FIGHTLIKEATIGER
#keatonandrex
The last day of school looked a little different than any of us could have even began to imagine. This morning we left sis to get on the bus the last time as a 3rd grader and we headed back to St Louis Children’s hospital for another hospital admission and 3 new types of chemotherapy.
Today’s agenda - 3 chemos over the next 6 hours. It’s going to be long day but their goal is to hit it hard and hopefully send him home tomorrow afternoon or Thursday !!!
🩶💙🩶💙🩶
#stronglikekeaton
#braincancerawareness
Rex made his debut to St Louis Children’s Hospital where he had big paws to fill. It’s no easy feat going into a crazy situation…. But like his pal Keaton - Rex stepped up to the plate & handled everything like a champ.
I truly feel like this pup was born for Keaton. Only time you truly heard much out of him was when we had to separate Keaton from Rex to get his port accessed and power line done.
Keaton is a champ. 2 days hooked to an intense machine. We needed to collect “3” for the stem cells unit. Only Wednesday he had 2.4!!!! So thankfully his body is working to help him out & we did not need to drive back down for a collection today!
We will head back down on Tuesday, May 20th to start his first round of chemo. It will be a very long & hard day - and we will not know how long he’ll be admitted this round. It’s truly up to how Keaton is handling the situation & how is body is responding. Each day will be decided on -
His story is touching others that have never met him in person. His smile lights up others. His courage to tackle whatever is in front of him continues to give me strength even when I don’t feel I have much to give.
Him and Rex are planning a “lazy” Friday at home… because I have a feeling he may try to sneak into his new 5S.115 this weekend if we have hay down.
This weekend we are praying for rest, and for his body to bounce back from the stem cell collection to prepare him for the chemo on Tuesday. We are thankful for the nurses, doctors, and our new team at STL. Both mostly. We are just thankful even for the hard ship because it’s leading us to something more.
#stronglikekeaton
#healingheeler
#fightlikeatiger
#braincancerawareness
🩶💙🖤💙🩶
Today is the last day of Jr High for these 2 because tomorrow Keaton starts his first day of Stem Cell Retraction at St Louis Children’s Hospital.
Over the next 3 days he will be going through the process to collect his own stem cells that they will “freeze” and store for the next few weeks until he’s gone through the next phase —- 2 More additional “1” Day Rounds of Chemo with 14 days of recovery in between the first cycle & second. NEXT, Tuesday, May 20th we will be re-admitted to STL Childrens to start that first cycle.
Today was bitter sweet as I dropped Keaton & Rex off at the Jr High Door. He’s grown so much and battled what most adults couldn’t bare with a smile & sassy attitude. He’s took on one of the hardest challenges anyone could face & keeps saying “Let’s get this done” as if he was just unloading a trailer of hay.
His determination to make the most of every day keeps my momma heart going — even when he’s picking on me constantly. Sunday It was “are you sure you know how to use my rake” …
For God gave me this Child … because He knew I needed him. But as someone reminded me the other day — Keaton is touching peoples lives he’s never even met. And I know God has this purpose for him to achieve a path we don’t fully understand.
Today I ask for a few simple prayers for Keaton, that his counts continue to have healthy numbers - that the next few days don’t take a toll on him & he can still attend his classmates 8th Grade Graduation on Thursday night & that he keeps wearing a smile showing off the light that shines inside him.
#stronglikekeaton
#healingheeler
#FIGHTLIKEATIGER
#braincancerawareness
Today’s been a good day! God is Good! Our prayers are being answered!!!
Yesterday we traveled to STL Children’s Hospital - where Keaton met his new Neuro-oncologist. We are waiting for a couple of more calls to come through before we have a solid plan on action going forward the next week. But tentatively Keaton will start the Blood Stem Cell process next Wednesday through Friday. Followed by being admitted Tuesday, May 20th for a new type of chemotherapy to help kick this Tumor in the arse!!!
Rex has also been in the process of getting his certification for Keaton as a Professional Service Dog. Today he was visited by Lana of Yellow Pals Dog Training where she helped us out with a Service Vest & some extra pointers for taking Rex with Keaton as we transition from MU to STL.
#stronglikekeaton
#healingheeler
There is a verse that continues to be forever on my mind daily — about Gods Plan.
🩶 Jeremiah 29:11: "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future.".
This verse suggests that God has a unique plan for each person, intended for their well-being and future hope. And while we here on Earth do not know that exact plan, we have to Trust & Lean on God even more.
Tomorrow, Keaton will travel to St Louis Children’s hospital where we will meet with a new Neuro Oncologist to help us formulate a new plan - one that specializes in Stem Cell Transplant Therapy.
We Know God has a plan far greater than anything we can comprehend or imagine for Keaton - and specifically ask for prayers for this new team of doctors to be able to generate the best plan for the kid who continues to laugh and joke - even today.
He told us again today, there’s a reason they’re doctors and we’re just hay farmers. And I’ve never felt more grateful for his open minded approach & attitude for life.
Keatons story is far from over. & I just know Gods looking down tonight pointing us in the direction we need to go.
This morning there’s a lot of things on my mind. But the simple fact is, Keaton’s home. He wore a smile and still managed to make a “fun” trip to PICU with some of his favorite nurses. Getting him out of there was sort of a chore { after he was already de-accessed & discharged!!! His nurses went to rounds with arm wresting!!! } i am forever grateful for the wonderful group of gals we’ve had on MU Peds Floor 🩺
His oncologist Dr Severance stopped by Wednesday and couldn’t believe that post brain surgery he was up - walking & hanging out. That on Monday he’d helped us in the fields. He’s continued to blow several of our doctors and teams minds.
He went from being a 1 in a Million Case to about a 1 in a 100 Million Case in the span of what seems like seconds.
Dr Quincy (Neurosurgeon) was able to get a good chunk of the tumor for biopsy - and we’re currently waiting for those results to better understand what’s going on. Until then we will not have a concrete “plan of action” for a few more days.
He’s supposed to take it easy, but do what makes his heart happy. We thought Keaton was on the downhill slope & nearly done 16 days ago. But for whatever reason, that’s not the case. He still has a long journey ahead.
Thank you for the prayers, the messages & being here for Him.
🩶💙
#StrongLikeKeaton
#FIGHTLIKEATIGER
#braincancerawareness
💙 🧠 🩶 Brain Biopsy Surgery # 2 🩶🧠 💙
🧠 1:45pm - Keaton’s in his PICU room he’s sassing his nurse, hes ate lunch & just chilling out - he will have another MRI in the next 16-24 Hrs to Monitor & make sure no internal bleeding or anything weird that comes with post op brain surgery stuff { this Is a normal thing!} —
Keaton has his phone - so feel free to send messages 🫶🏼 - we did get some unexpected updates regarding the tumor.. we will have a meeting with the Oncology Team after the “Brain Board of Directors” have time to consult — so as of today i don’t have the answers to many of the questions —-
Prayers are welcome! God knows, God sees, God has more power in Healing & this is just another part of Keatons Story —
🚨 10:15am - Keaton Is out of surgery & in recovery - Surgery went smoothly per Dr Quincey - she was able to get a good biopsy on the growth … we have not been allowed back there with him yet.
Please continue to pray as we navigate the next steps moving forward -
🔔 7:06am - I will try to update this post throughout the day with news as it comes. He was in good spirits this morning FaceTiming with Jaelyn & Rex { His Red Heeler Puppy } as she got ready for school. They have taken him down to the surgery floor - the biopsy surgery will begin at 8:00am.
Their goal is to retrieve some of the tumor for biopsy, some of the fluid surrounding it, as well as check on the health of the ventricles and brain tissue - where the mass has grown. This will give us a better Idea of what “comes next”.
He asked if he could keep his Cross Bracelet on & the team gave him a Head Nod “yes”. So He’s taking God right there into the OR room with him.
"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand”
- Isaiah 41:10
💙🩶💙🩶💙
#StrongLikeKeaton #fightlikeatiger
Keaton was admitted today for a sedated MRI that will lead up to him having his second Brain Biopsy Surgery Wednesday Morning.
This biopsy will hopefully help show us a better understanding and diagnosis going forward.
Keaton will be in PICU #7531 for the next several days for those who want to flood his room with any messages or cards - or can be sent to Mark Twain Junior High School through Mrs Krankka or Mrs Wilson.
Please show your continued support by wearing your #StrongLikeKeaton shirts or any Blue/Gray tomorrow.
💙🩶
You don’t know your own strength until you test it. And continue to test it. Daily…
A few weeks ago Keaton had another MRI following his last round of chemotherapy - and while his tumor markers continue to show “no cancer”. That MRI didn’t give us as positive results as we’d hoped for. Instead it’s leading us down a different path. One I know that God already saw & Is preparing Us for.
Today we met with our Neurosurgeon Dr Quincey, who performed his first surgery & retrieved the original biospy. She gave us some insight and the next steps.
Next week he will undergo a sedated MRI, followed by a biopsy of the tumor to determine which route we go down. - as of right now the plans for radiation has been pushed back until we know more from the MRI & Biopsy.
We are thankful every day that Keaton has battled All this like the warrior he is. A true survivor & fighter. In the last few weeks, getting to sass his teachers during class, walking the halls with friends, even getting in a few baseball practices with his teammates, like a “normal 14 year old”.
While I don’t know the feature, I do know that this is only one hill not a whole mountain to cross.
“And we know that in all things God works for the good of those who love him, who have been called according to his purpose" - Romans 8:28
💙🩶💙🩶💙🩶💙
#StrongLikeKeaton
#braincancerawareness
#fightlikeatiger
And just like that round 6 of 6 is DONE!!
🎉🎉🎉🎉🎉🎉🎉
Chemotherapy is officially DONE!!! We was able to sneak out last night by 10:00pm he was so happy that Jenny cut him loose.
There’s alot of emotions this morning sitting in the sunshine. Taking in so many thoughts.
Prayers work. Miracles Happen. God is Here & within us - we can do anything hard with the help of Him.
When we was admitted Thursday for Day 1 - i will be honest. I was scared all over again. I kept thinking. We’d got this far. No extra ER or Hospital Visits. Besides being extremely run down at times Keaton handled Chemo like every thing else he does. With a strong willed attitude of “let’s get it done”.
We got some of the very best news that day - His tumor markers show that he’s 💙 Cancer FREE 🩶 - and chemotherapy would conclude after this final round. However we were given some hard news, but he’s tough. Tougher than me at times.
He will have several weeks of radiation to follow. Things we know today,
He is Home. He’s tired but “okay”. His smile is strong just like him.
🩶 He will have an MRI Scan on 04.10.2025
🩶 We will then meet with our team of doctors, on 04.16.2025
🩶 When radiation starts it will be roughly 4-6 weeks, 5 Days a week - more than likely in St Louis -
While this journey is one we wouldn’t wish on anyone, it’s the path we are walking on. We continue to know that there is POWER IN PRAYER! And we couldn’t have walked this pothole road without any of you being by our side.
💙🩶💙🩶💙🩶💙
#stronglikekeaton
#braincancerawareness
#powerinprayer
#FIGHTLIKEATIGER
Round 6 { the 5 day, harsher treatment } will begin tomorrow morning. We will be admitted for the next 6+ days.
We are so incredibly thankful for the loving, supportive PRAYIN’ community that we are surrounded by.
We will do another MRI in the coming weeks to get better answers going forward.
#StrongLikeKeaton
#BrainCancerAwareness
💙🩶💙🩶💙🩶💙
🩶 💙 🧠 💙 🩶
The long hard unknown road of cancer & chemotherapy…. The many “what ifs” and “unknown factors” - the “I have questions - but I don’t have any answers” …
It’s hard. There’s moments I just look at him, and KNOW God is working on him, even when it’s hard. It’s leaning fully into our faith - on God himself & trusting in His decisions leading our oncology, neurology & pathology team.
Yesterdays labs did not make count for todays round 6 to start. - and while this is discouraging at some points. We expected it after knowing what his lab counts looked like last Thursday and this past Monday.
Outside of being a little more tired than normal, he’s been enjoying this much needed warm sunshine, as much as i have (despite his “i don’t want my photo taken” . . . We’re all looking for the “end” date. But I don’t know when that will be. All I can do is trust in the process and keep doing what we’re doing.
🩶 Round 6 will start Thursday, March 20th 🩶
#stronglikekeaton
#braincancerawareness
🩶💙
We’re all just ready to get back to “normal” at this point. The last few weeks, we’ve been just enjoying the warmer weather & mentally trying to keep Keaton in good spirits leading into his next round of chemo - which is scheduled to start, next Thursday March 13th.
This is Round 6. The round we’ve all been waiting for. But with it comes a lot of “unknown” things between now and when we start to finish that 5 days of chemo leading into another MRI scan to see the end results of the last 16 weeks.
16+ weeks. 4 months. In November I remember Keaton saying mom “March isn’t that far away” - - and it’s not. It went faster than any of us could have imagined.
It’s here.
He’s made It! Without any extra hospital visits. Without any sickness hitting him. We made it. We made it with the help of our friends & family. Our communities praying and cheering Keaton on from the sidelines.
This week I pray specifically that his counts stay where we need them to be so that we can finish this round & he can finally be *Done*. I pray and KNOW GODS healing him from the inside out. And I continue to ask for prayers for which on the next MRI that this tumor is no longer there.
So that come June, he can climb back into the tractor & do what he loves. Rake Hay. Be on the farm like normal. And play baseball this summer with his friends.
💙🩶🧠🩶💙
#stronglikekeaton
#braincancerawareness
#fightlikeatiger
🩶🩶🩶🩶🩶🩶🩶
🩶💙🩶💙🩶💙🩶💙
A quick update … because honestly there’s not “a lot” new to report.
Round 5 is done & over. We were able to bring Keaton home yesterday afternoon. He slept alot during this round - so Him & Rex are planning a much needed rest day.
🧠 The tumor is shrinking, it was down 3mm between now and the last scan that was done after round 2. Tentatively he will go back for round 6 (5 days of chemo) March 13th. Followed by another MRI to see what the doctors plans are going forth. - that could essentially mean more chemotherapy, radiation - a combination of both. Or possible surgery. Originally it was too large of a mass in a “1 in a Million” spots in the brain and was too risky to just remove it when we got the original scans. — one of his favorite doctors was on rotation this weekend - reminded us both - to not over think what we dont know yet & left us with these to focus on
The goals for the next few weeks.
+ stay healthy & focus on good nutrition & hydration
+ enjoy the sunshine ☀️ & walk outside with Rex
+ stay positive & Trust in Gods healing.
+ do not get discouraged with the “unknown” factors.
💙💙💙
Thank you for all the prayers, continued support, messages, and the extra love for my iced coffee 🧋 habit keeping me going. - - I know one day. I will reflect back on these posts and think “how did we survive”. It’s because all of YOU praying. And letting God work through this to bring such a testimony not only for Keaton. But me as well. Writing has always been my therapy. And today - hits a little more. Knowing he’s home. He’s smiling. He’s safe. And I can rest a little easier until the next round starts again.
#StrongLikeKeaton
#braincancerawareness
#farmkid
#cancersucks
#fighlikeatiger
There’s a lot of emotion for this momma going into round 5 today. Last week we pushed off starting chemo due to the slushy frozen ice on our roads - - this week negative temps. But like the true champ he is, Keaton’s like let’s go & get this over with.
💙🩶🧠🩶💙
Our whole lives were pivoted & changed on Wednesday October 30, 2024. And I wouldn’t wish that on anyone - - but it truly has “woke me & Jason” up to what truly matters on our farm.
Our family. Our kids. Our passion for our “specialty niche”. ENJOYIN what we do because it’s reflecting every day on our children. Each time a doctor asks Keaton what he wants to do when he’s done with chemo …. Is the same answer.
“I just want to be able to Rake Hay & be on the farm”.
🩶💙🩶💙🩶
Round 5 of 6 is nearly complete … then another MRI in March will help to determine what the next actions will be. The Tumor is half its original size & we continue to Know Gods Healing him just in time to start Hay Season in a couple months.
“So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand” — Isaiah 41:10
💙🩶🧠🩶💙
#stronglikekeaton
#braincancerawareness
#cancersucks
#strongereveryday
#farmkids
They say that “no news is GOOD news” … and not too much has been happening since Keaton’s last round of chemo; besides a lot of resting & getting his sass back!!! Several of the doctors on our Oncology team remind us each time we are there; boring is good. Boring is what we want. Boring is meaning that stuff’s working the way it should & you’re not having side effects or any other issues! Boring is what we want to be - even if bored is a struggle for both of us …. Being cooped up is hard on both momma and Keaton.
Last week he went for labs and another MRI. It is continuing to shrink which is answering the prayers we’ve been asking for - we will get the official MRI results from the team later this week.
He has another round of labs this morning that will help better determine if his ANC levels are at a level where they feel comfortable starting with around 5 of Chemo on Thursday … this round is not nearly as harsh as Rounds 2 & 4 had been. He will be admitted for 3 days for the 3 days of chemotherapy.
Keeping his mental health in good spirits has been our top priority the last few weeks. One of his buddies sent him some funny socks which are the highlight right now! And comical joke with the nurses 😉 thankful for the warmer weather we’d been having & the fact he’s been able to enjoy some fresh air & the ability to be outside has helped us all the last week.
🫶🏼
We know that while cancer is NOT what God intended for us. He is continuing to lead us down this path & provide for us. I know that this is only a small part of Keaton’s journey in sharing his story. We truly appreciate each and every one of you continuing to pray for our wingman! Hay Season isn’t too far away and he’s got big goals for us this summer.
- until later this week!
#stronglikekeaton #braincancerawareness #fightlikeatiger #cancersucks
Cancer. Sucks. Chemo. Sucks.
There were so many emotions with this round. 🥊 Round 4 came after Keaton with everything it had….
I have sat down to write numerous times throughout the last week. And each time I find myself deleting it. Because if we “backspace” and delete just maybe - maybe we can ignore it. Ignore the facts. Ignore the feelings. Ignore the trauma of being at the hospital.
I think for the first time since we found out Keaton’s diagnosis- it became “real”.
He couldn’t just laugh & sass the chemo off with his nurses. He didn’t have the energy to roam the halls, let alone leave his room several of the days we were admitted this round.. We sat in quiet silence, and it was when he asked me to hold him. My momma heart “knew”. We finally had cracked.
Round 4 brought Keaton & I closer than we have in years. We talked. I held him. Rubbed his back trying to give him what strength I could. But in those 5 days of chemo. It all became very real for us.
Keaton has cancer.
Keaton is going through chemo.
Keaton is battling so hard & now that we’re back home, is finally starting to eat and smile again.
This round made me realize how precious life can be. To take in the good days & lean into those that surround you to help keep you going. That asking for help isn’t a sign of weakness -
Today is the first day I’ve seen a small glimpse of “Keaton” in almost a week. He was joking about how me letting cows out today when I go to chore. This is MY Keaton and I refuse to let Cancer take him.
I know that God has a plan & a path. I have every Faith in Him we will get through this - and Keaton will once again be raking hay, visiting the principals office to harass Sam & complaining about not being paid enough. But until then, we’ll just keep battling this thing one day at a time.
- a very tired momma
🧠1.29.25 - Round 4 completed 1.27.25 - they will do an MRI sometime before round 5 begins tentatively 2.13.2025
📞 If you have Keaton’s number and would like to text him, I’m sure he’d love a little bit of company. As he will be pretty limited on where he goes as his numbers continue to take longer to recover.
#BrainCancerAwareness
#StrongLikeKeaton
#cancersucks
Start of Round 4, Day 1 of 5
Today I was apprehensive of how things would go.
Would his numbers be high enough to start - would we get another week off and more waiting when all he wants to do is push through these chemo treatments and return to “normal” life again.
We’ve had numerous chats the last few days trying to prepare for this round. It’s harsher. It’s longer. It takes more out of him. It’s 5 days of chemotherapy (2 different types, daily) - and usually we stay for 6 days of MU Life.
He continues to find laughter, joking & sassing his nurses and the people closest to him. Last night he sat down and helped Jae work on her math assignments - spending extra time explaining it when she didn’t fully understand. I’m constantly reminded of how strong he is, how much “older” he’s always seemed and it continues to prove that with every day since we’ve found out he had a brain tumor.
Most adults can’t process or understand what he’s went through - there’s times I certain don’t. But he reminds me daily. It’s only a short period. We can all do hard shit for a while.
He’s resilient. He’s strong. He’s fighting this thing with a smile. And for that today I am thankful. As we sit through his first bag of chemo, a toddler who’s battled & won the fight, rang the bell . It instantly brought me to tears - Keatons words he’d mentioned earlier this week to me, “don’t worry mom. March isn’t that far away” — when he will finish these 6 rounds of chemotherapy - “just in time for hay season”.
I am thankful for so many things.
I am thankful for our friends & family - our community - my online followers - to every one of you, who have continued to pray for us.
#StrongLikeKeaton
#braincancerawareness
#FightLikeaTiger
An update. That sort of stinks. But part of it. His counts didn’t hit high enough today. So we are in fact not being admitted today. And coming home. We will try again next week on Thursday, with hopes he’ll hit the levels needed for them to start Chemo. This will push all chemo going forward a week backwards.
💙 🧠 🩶 Round 4 🩶 🧠 💙
{ 1.16.2025 }
I keep thinking & reminding myself. He’s halfway through chemo. It’s half the size it was when we started. We can all do the hard things for a short time. But I know it’s starting to wear on him - just as it is me.
Being cooped up during winter days are hard enough but when you’re a farm kid who’s used to being Jason’s right hand wingman - to playing sports & being active at school. I think it’s starting to take a toll on everyone.
Keaton continues to carry a smile & make jokes. Laughing with each nurse & doctor he meets along this path. Yesterday he had his very first eye doctor appointment. - I remember the doctor saying “I read his chart, he’s got to be the healthiest patient I’ve met going into this”. Yes. Yes he is. -
While his eyes are good & he doesn’t need glasses [something he was afraid they’d tell him]. He is suffering from some nerve damage behind the eyes that we’re hopeful that will go away after time. It was caused due to the pressure & tumor inside the brain. Thankfully his vision was not effected. And hasn’t been with the ongoing chemo so far.
Today we head back to Columbia again, as Keaton will start round 4 of chemo. This is the 5 days straight of chemo (which is the significantly harsher of the 2 different cycles). We will more than likely be admitted 6-7 days. Then right before we do Round 5 he will have another MRI of His brain & spinal cord to monitor the progress.
We continue to pray for Gods Healing Touch. Making it known our faith is bigger than this. God is the greater healer & through Him our team will know how to handle the situation.
We truly appreciate each and every one of you - from checking in texts & cards - the gifts & donations { this week we used some funds to order a few things to take to the hospital with us; a new roping dummy, some card games, a new ps5 game, and a new minky blanket}. And all my coffee treats - because let’s be honest …. I’m running on caffeine & chaos most days.
A so sit and pray for this round. I am once again reminded of how this started. And how such a short period of time. Exactly 78 days seems so far away ago / I am thankful I listened to my “inner mom” dialogue that day. Not pushing it off as I do something’s with “it’s not broken or bleeding - you’re fine” mentality. That he truly wasn’t himself. And something wasn’t right. Never doubt yourself. If something feels off. Check it out. Insist something isn’t normal. You have to advocate for yourself & your children….
“Father God, in this moment of overwhelming thoughts and emotions, I turn to you. You are my refuge and strength. Please grant me peace and clarity
in the midst of chaos. Help me cast my burdens upon you, knowing you care for me.” Amen.
#braincancerawareness
#stronglikekeaton
#cancersucks
Today was extra special 🫶🏼
Keaton was interviewed on the KRCG 13 news that aired at 6pm tonight ( watch it here 👇🏼
https://krcgtv.com/watch... ) around the 4:45 marker.
Special thanks to the whole Lauf Equipment Company, Inc. but also our Massey Ferguson team - - it’s crazy to think how things have changed, over the last 2 months - but I am so grateful for each and everyone of y’all who have helps us along the path of healing .
#StrongLikeKeaton
#MFBornToFarm
#braincancerawareness
Chronicles of Kayla Wieczorek
Round 3 is nearly completed and with a joyful heart.
♥️
When we were admitted on Thursday, as originally planned, at clinic we were given the MRI scans of his brain and spinal cord he had the previous Friday.
Glory to God and the Prayer Warriors that have been hard at work the last 2 1/2 months.. And I am forever thankful in so many ways - that it is hard to even begin to describe.
💙🩶💙🩶💙🩶💙
We were given some great news!!! The original scans he had prior to Surgery & Chemo showed the tumor being the size of a grapefruit. After 2 rounds of chemo it has SHRANK nearly half in size and roughly is the size of a large strawberry { give or take }. We will continue the path the Lord has given our Doctors & Team. They will have another set of scans done in between rounds 4 & 5. There will be 6 rounds total before they make more decisions based on the last scans after round 6 has be completed in March.
Every day I hear him give me sass or harass me about something- I find myself thinking “is this real” - “this has just got to be a bad nightmare & I’ll wake up”. There’s moments when I am so grateful that he’s handling things so well. He’s laughing. He’s joking. He misses school, checking cows, working in the shop & delivering hay with Jason. But as we continue to remind ourselves - we can always do hard things for a short period of time. 1 year and we pray that this is another just story for him to share along the way of life.
👣 👣
When doctors ask what his 2025 Goals were yesterday, he rambled off “I just want to go back to work & Rake Hay come Summer”. I’m so proud of him because I truly think if he wasn’t handling this situation as well as he is. I know my momma heart would be cracking even more than it already does. As we finish Day 3 of Round 3 this morning, he’s just extremely run down and exhausted - and ready to be back home in his own bed again. { I know I am ready for us to be back in our new somewhat normal routine again }.
"Lord my God, I called to You for help, and You healed me" - Psalm 30:2:
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Round 4 will begin Jan 18, 2025 & will be the harder of the 2 cycles. It’s the 5 days of chemo. We continue to pray he stays healthy & keeps his smile until the next round.
#stronglikekeaton
#braincancerawareness
#GodsPath
Wishing everyone a Merry Christmas Eve — thankful that we get to Enjoy Christmas at home!
After labs last week, and again yesterday that were looking so good, our oncology team decided to go ahead and start round 3 as originally planned on Thursday instead of pushing it off til next week.
He had a Brain & Spinal MRI on Friday - but we have yet to hear results from it.
Besides losing his hair & some weight, we are thankful he’s remained feeling like himself after 2 rounds of chemo. We continue to pray that the tumor is shrinking & will not be there on each set of scans.
It’s the season to truly remember the “reason”. It is an opportunity to pause and give thanks for the love, hope and joy found in Jesus – our Saviour and friend. As we exchange gifts with loved ones, it is out of remembrance of the gift God gave us in Jesus. The gift that we are loved, are never alone and can have hope for the future.
We are forever grateful and thankful for each and every one of you following along with Keaton’s journey.
We will be admitted Thursday, Dec 26th at MU Children’s Hospital and stay for 3 (to 4 days). This is the shorter of the 2 cycles -
Merry Christmas 🎄
#StrongLikeKeaton
#braincancerawareness
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✅ Round 2. Complete. And we’re back home!
I’m not sure who kicked who’s butt the most. Watching Keaton battle this round was tough but he’s tougher.
His auntie came on Friday & trimmed up his hair (something he can be in control of right now as it’s quickly falling out).
Much to his annoyance, I won for getting to decorate his IV pole, we continently named “Bob” for Christmas. 🎄 all the nurses and doctors thought it was awesome & added a lot of cheer to the floor. He even used his new Bluetooth radio to share Christmas songs as we made rounds and rounds of steps on the 7th floor.
I am thankful we’re home. He’s sleeping a lot right now, but still loves to get texts, calls & FaceTime! We’re limiting the visitors just because of the harshness of this round of chemo taking a toll on his immune system.
Round 3 will start 12.30.24 & we’ll spend NYE celebrating at MU 🎉
We appreciate all the prayers, thoughts, messages, cards - it truly means the world to us to know the love & support we have.
🫶🏼
-kw
PS if you’re still wanting to order a “Fight Like A Tiger” 🐅 🩶💙 shirt, you can order them ⬇️
https://www.farmmerchbin.com/.../strong-like-keaton.../390
#StrongLikeKeaton
#braincancerawareness
#fightlikeatiger
Round 2 of Chemo started today.
This Mommas thoughts are all over the place. When we left home this morning, we weren’t even sure if we’d be staying to get admitted. We were prepared for another rough number situation; after Monday’s Labs were down { which is expected & we have talked about - that is typical in the chemo path. Labs go up & down as the Body Heals itself }.
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There’s so much “known” but also “unknown” contributors to how we move forward each day. But the sun is shining & even though it’s cold - we are thankful for many things.
Praise God 🤍 His numbers were high enough & we were able to continue our treatment as planned. We have started on Day 1 of 5 (Cycle 2 is 5 daily doses of chemotherapy). He will be a resident at the “Hospital Hotel” until at least Monday.
"I can do all this through him who gives me strength"
- Philippians 4:12-13
Our community { online and rurally } are helping to support our Wingman by wearing their Fight Like a Tiger shirts today! If you have yours on, & feel like sharing post your photos in the comments 🫶🏼
💙🧠🩶🙌🏼💙🧠🩶🙌🏼💙
#stronglikekeaton
#braincancerawareness
For ever thankful for our community support !! Today Jae had a dentist appointment - - as you might know, Dr Poppa had to come and remove Keaton’s braces after only having them on for a couple days - due to the MRI scans when we first got to children’s hospital.
Needless to say, some of these amazing ladies I’ve known my entire life - I teared up. Between the holidays hitting and seeing the whole dentist office decked out in his #stronglikekeaton shirt…. Emotions are higher it seems this week as we prepare for our second cycle of chemo later this week.
If you have a #StrongLikeKeaton shirt, I’m asking you to flood the community come Thursday 💙🩶 (I know that RCE KIDDOS are wearing Blue & White Frosty ☃️ Colors for Their Holiday Spirit week!)
30 days.
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It’s only been 30 days. From thinking he had something as simple as migraines or heck just a bad “virus”. 30 days… from finding out it was indeed. Not a virus. Not even a mirgaine.
Instead hearing the words no parents want to hear, tumor. Let alone it be cancer.
After never having a broken bone, stitches or even missing school for the last 3 years …. He’s managed to have 2 surgeries, stitches, a port placed, fluid drained off his brain, missing the last month of school, completing his first cycle of chemo & getting ready to start cycle 2 (this will be the 5 day cycle, with up to 7 days being admitted at MIZZOU Children’s) on Thursday, Dec 5th.
For someone who’s always been able to “find the perfect words” or string a “few sentences together” for a post …. Words have escaped me.
Last week our small town community rallied together & had a benefit for our family and I’ve been in a state of shock since. It seemed as if after that, it became extremely “real” for us.
I can’t even begin to say thank you to each and every one who was a part of the Strong Like Keaton Benefit💙🧠💙, those who donated baskets, auction items, money, supplies, their time, the hugs & prayers.
Being from a small town, where everyone “knows” everyone - - truly has inspired some of my favorite blogs I’ve written over the last decade. But now it’s taken and made even more of impact on our families lives. And it means so much to us. Because saying thank-you doesn’t really seem like enough compared to the love & support yall have shown us 🫶🏼
So — THANK YOU — from the bottom of our hearts; especially as we navigate the next few months, journey the path the Good Lord has set for us, learning a different way of life & prepare for the Holiday season while keeping Keaton happy & healthy as best as we can during chemo & treatments.
Keaton had to make a special trip out this morning to get the Massey Ferguson 5S.145 Keys from Lauf Equipment Company, Inc. that showed up at school today.
He insisted on taking it for a little test drive around the school parking lot to make sure it was “in top shape” for who ever gets the “winning” ticket 🎟️ come January!!!
Tickets will be available at the Strong Like Keaton Benefit💙🧠💙 tomorrow evening and continue to be available for purchase until 12.31.24.
You can find all information regarding the ticket sales or tractor information on the flyer, or reach out to Zack at Lauf Equipment for direct 5s.145 questions.
#StrongLikeKeaton #braincancerawareness #MFBornToFarm
While Keatons not going to be climbing into a tractor seat any time soon, we are heading into the toughest job Gods asked of him so far.
Today we will start His first round/cylce of Chemotherapy. This is a 3 day cycle and considered the “easier” of the 2 different treatments that rotate every 2 weeks.
We will be admitted, and staying again at MU Children’s Hospital in Columbia for the next 3-5 days depending on how he’s handling the chemo treatment.
Today the community and school district are helping to support his cause, in walking this path - we’re flooding this side of Missouri with
💙MT BLUE & GRAY for Brain Cancer Awareness 🩶
If you felt lead to pray for him to stay sassy & strong, a little pray for his sister who’s his biggest cheerleader but also struggling to see him not be his complete self, for the doctors, nurses & our whole team at MU - - we sure appreciate all the support, love but mostly the Prayers 🫶🏼
"For nothing will be impossible with God." - Luke 1:37.
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#StrongLikeKeaton #braincancerawareness #FIGHTLIKEATIGER
There will be a Chili Dinner & Auction, held at the Mark Twain High School November 23rd from 4-7pm.
For more information please visit https://facebook.com/events/s/wieczorek-chili-supper/1288217928974255/ or to donate please contact
Emily Perry, Brittany Ludwig, or Samantha Krankka
#StrongLikeKeaton #braincancerawareness
A Quick Update from Keatons Chemo Team.
🧠 Brain Cancer doesn’t have “stages” like other cancers do. - in Pediatric Patients it’s really just that “cancer cells” that we all have flipped the on switch instead of just continuing to grow as a normal teenage kiddo might. It’s one of those things they here turn on or stay dormant. And no one understands “why”. It’s not my job to question Gods path but to just continue to keep Faith for th journey we are on. We go on Monday to learn about everything but this is the general outline.
🙌🏼 The Cancer is ISOLATED to the 1 spot currently and therefore the Brain Cancer cells can not spread to other areas EXCEPT for the Brain or through the Spinal Cord (WHICH WAS 100% clear!) so praise God!!!
🧬 He will have 6 Cycles (Rounds of 2 Different Treaments) — each round will be admitted and staying at MIZZOU Children’s PEDS floor 7 (rooms will change each trip) - he will have 2 weeks “off” to rest, hydrate, etc in between each cycle.
🩶 Cycles 1, 3, 5 will be 3 Days of Chemo
💙 Cycles 2, 4, 6 will be 5 Days of Chemo
His first cycle will start Thursday, November 14 & will be there 4 days more than likely.
The most important thing is He’s STRONG! And he’s still in good spirits and ready to kick this thing in the rear!!!!
Thank you for the continued prayers & support!
#StrongLikeKeaton
He was proud of America for getting their “shit” together and putting Trump back in. 🇺🇸
Today he went back to get his Port Placed. This is scheduled to be outpatient so that we can return home and fully rest from his surgery last Friday.
Treatment Plans are still being worked on & we won’t know more til later today or tomorrow.
Thank you to everyone who’s helped us over the last 7 days. It truly has blown my mind.
This weekend I will finalize the CaringBridge page so that all the links are available.
#stronglikekeaton #braincancerawareness
🩶 Shirt Fundraiser - https://www.southlakedesigns.shop/.../stronglikekeaton... or https://www.farmmerchbin.com/.../strong-like-keaton.../390
💙MealTrain - https://mealtrain.com/wml01w
🩶 Wieczorek Benefit Dinner, 11.23.24 contact, Emily Perry, Brittany Ludwig or Nicole Birkhead
💙 HNB in Perry for direct donations, Jill Palmer or Sam Krankka
We broke out briefly from the hospital last night, and the first thing he wanted to do was visit school, see some friends and of course harass his “Krankka”.
11.5.24 Update (as we left the Hospital last night).
• we will go back tomorrow morning, to have surgery to place in his Port.
• chemotherapy will then start either tomorrow or next Tuesday depending on a few things (I will not know until after we’re there tomorrow with the port placement. )
We do not know of how many treatments or how long. We’re still waiting for some of the path labs. But we DO KNOW, this is Keaton’s journey. Main goals this week are to keep Keaton in good spirits & healthy!
This page will become the center of #StrongLikeKeaton -
We’re not sure of Keaton’s path yet only that God continues to lead us through the parted waters & that there is a purpose behind all of this.
There will be several updates through this page as we navigate the next steps ahead.
The continued prayers, messages, meals & donations have completely blown us away. But I know there’s Power in Prayer and it takes a Village to raise & take care of any child!
I am beyond thankful & blessed by the outpouring of love.
Are you ready to
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